Sunday, April 15, 2012

A Dream Deferred

Langston Hughes

What happens to a dream deferred?
Does it dry up
like a raisin in the sun?
Or fester like a sore--
And then run?
Does it stink like rotten meat?
Or crust and sugar over--
like a syrupy sweet?
Maybe it just sags
like a heavy load.
Or does it explode?

For a long time, the idea of me feeling normal again was a distant dream. I had gotten so used to the aches, pains, fatigue, and other symptoms that came along with my disease and subsequent treatment. Through the chemotherapy, which wreaked havoc on my entire body, inside and out to radiation which was very tolerable until the end, I have experienced a wide range of conditions and variety of symptoms.

I was never as glad as I was when I had taken my last treatment and felt overly-excited about returning to my 'normal' self again. Now, I heard from other survivors stories about how you never fully recuperate and how the smallest illness , like a cold, could wipe you out for weeks. I would especially hear of these tales when I would mention how tired I often was. Well, my last treatment had come and gone and I was anxiously awaiting my 'normal' feeling to return. It never did. I still woke up with horrible headaches, felt tired to the point of distraction, and still held onto the occasional body ache. Trying to sustain energy and focus for my classroom full of twenty-three rambunctious first and second-graders was almost impossible, to say the least.

As the days went by, my fatigue became markedly increased, to the point where if I sat still for any length of time I would nod. Now, when I say nod, I don't mean the slow blinks that precede a slight bobbing of the head. A nod for me was a sudden neck spasm that marked me waking up and not even realizing I had fallen asleep. Unfortunately, I most often noticed this on my rides to and from work...and it was SCARY!

I began to think that maybe what others, mainly my treatment nurses who often witnessed my sleeping habits while in their care, were saying about the possibility of me having sleep apnea wasn't as far fetched as I had originally thought. In my quest to find out what was wrong with me I scheduled a sleep study. After I arrived at the hospital to be wired and tested the technician explained the process. It was a two-part study. The first night you would be wired up and monitored in an effort to see if and how often your breathing was disrupted during the night and to also monitor the oxygen levels in your body during sleep. If it was discovered you had sleep apnea then you would come back a second night and get wired up and hooked to a breathing machine to determine how your body would respond to the treatment.

Now that you know how it's supposed to go, let me tell you how my sleep study went! Everything began exactly the way it should have. I got comfortable, put my PJs on, and the technician came in and wired me up. This process took about 30 minutes and let me tell you I looked ridiculously hilarious once it was over. Despite all that, I settled in to bed watched some TV and read a couple of magazines before drifting off at about 11:00pm. At approximately 1:00am I felt the technician gently waking me up so he could slip a mask over my head. Being that I was so groggy and into my sleep, I just let him do it then I rolled on over and went back to sleep.

The next morning I was awakened at about six thirty to be unhooked and released. While he unhooked the thousands of wires I asked how many times I had stopped breathing. He responded, "Well, by the time I came in an put you on the c-pap machine you had already stopped breathing 98 times. Your blood oxygen levels were down to 65%.
<insert blank stare here>
Needless to say, I do not have to return for part two of the study and a machine has already been ordered for me. Hopefully, it will be delivered by the end of the week.

For me this diagnosis is a RELIEF!! Finally, I understand why I feel the way I do and can do something about it. For those of you who don't know, sleep apnea can cause high blood pressure, congestive heart failure, fatigue, headaches, slowed metabolism and may also contribute to the development and/or progression of diabetes. Check. Check. Check. Check. and Check. I have already been diagnosed with five out of six of those conditions. Sleep apnea is also hereditary.

I was excited to know there is something legitimately wrong with me and these feelings aren't just figments of my imagination. Now I just have to wait. I'm sitting on pins and needles hoping this machine is delivered sooner than later. However, until then my dreams will have to be 'deferred'.

My message here is to always be pro-active when it comes to your health. Once it's gone you truly have nothing left. And ladies, if you haven't done it lately, PLEASE FEEL YOUR BOOBIES!!

Tuesday, April 10, 2012

I Will Survive

It's past midnight and I should be in the bed. I have to be at the hospital at six in the morning for surgery prep to have my power port removed. This is the mechanism through which I have received my chemotherapy treatments for the past year. It is marking the end of the cancer era for me and the beginning of a new one....the one of SURVIVORSHIP!!

I am excited about having this foreign object removed from my body because it has been a big inconvenience from day one. The doctors all worked overtime to convince me to have this port implanted because it would make treatments go so much smoother than having to place an IV for every treatment. Their argument was that with this port they could draw blood AND administer my chemo through a one stick process every time. It sounded GREAT - but if you guys REALLY know me, then you know NOTHING medically is ever that easy when it comes to me.

From day one my port was a big PAIN IN THE ASS!!! I won't even talk about how I had to be awake during the surgery while they implanted it into my chest and ran the tube from my port, up to my neck and into my jugular vein so it emptied directly into my heart to pump those toxic chemicals through my system. Yea, I'd better not mention the HORROR of that ordeal. Or of how my port was tilted at an angle that no one could seem to access through just ONE stick. Or of how there was only one person who could ever access it properly the first time. OR of how, when the nurses saw me coming in for treatment, they scattered about like worker ants who SUDDENLY had so much to do because none of them would come near me or my port because of how I gave the business to the first nurse who inflicted so much pain upon me!! Yea, the nurses and I got a big laugh out of it MUCH later but none of them EVER attempted to try when it was time for the 'sticking' to be done. Hilarious was when they tried to send in a 'new girl' one day to do it. I didn't have the heart to send her to her demise so I properly informed her that the other nurses were setting her up for failure. Then I promptly sent her BACK out to the nurses station to tell them to quit playing!!!

AHHHHHH.....the good ol' days.

Well, I'd better go to bed because I have less than five hours to sleep. Pray for the medical staff that this all goes well. If it doesn't, you'll read about it tomorrow!!

Thursday, April 5, 2012


*WARNING: This post contains unlimited amounts of sarcasm*

Today I am sitting in the doctor's office again searching for a few answers. I've been feeling more beside myself than usual so I'm desperately trying to get it together. During my last cancer treatment the doctors discovered that my potassium levels had bottomed out at dangerously low proportions and I was required to have a two-hour potassium drip before I could leave. (I'm going to conveniently leave out the fact that it was because I wasn't taking the potassium pills I was prescribed to offset depletion due to other medications they had me taking).

The nurse stated I need to come back in two weeks for additional lab work to see how I was progressing. Well, It's been three weeks and my symptoms are back with a vengeance: Light-headedness, nausea, muscles cramps/spasms in my extremities, and headaches etc. So here I am!

My labs FINALLY came back and they are all normal. YaY.....(not). I still don't know what's wrong with me and I made it very clear to my nurse I wasn't happy with all this 'normal levels' nonsense and she had some more work to do!! I've learned to be careful what you wish for because now I have two MORE hours of fluid to intake intravenously. Tracy (that's my nurse) is now looking into the fact that it may be due to some of the meds I am on. (YOU THINK?!?!? It's not like I'm taking a million pills a day.)

The FINAL outcome is that I have to discontinue one of my meds until I see my primary care physician next week (*voice inside my head* JUST ONE!?!?!), the other 99,000 I have to keep taking until....until....Well, just until.

I told you all that cancer is the gift that just keeps on giving....out of the numerous pills I take a day, most of them are to treat a condition created from the cancer/cancer-treatment or to keep the cancer from coming back...Oh yea, did I mention the "anti-cancer" pill I have to take twice a day for five years?!?!

But I digress....LOL. I just needed to vent AND occupy my time since I've been here ALL DAY!! The bright side is that I'm still cancer-free and "living my life like it's golden".

Be Blessed My Friends!!